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About Kelly

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Cardiomyopathy
Heart Transplant
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Heart Transplant
In November 1995,
Kelly’s health had unavoidably declined to the point of congestive
heart failure. Her condition became so severe that she was kept alive
only because of IV drugs and was subsequently placed on the
recipient's lists as a priority emergency candidate. Fortunately, less
than 24 hours of her arrival to the UCLA Medical Center, she and her
family were advised that they had identified a matched donor heart.
After a few delays, they were confirmed for a midnight surgery. Thanks
to a very talented group of surgeons, Craig and Kelly were reunited
just six hours later.
Approximately one week after the surgery, Kelly had her first of many
biopsies that revealed her body was rejecting her new heart. It was
frightening to hear this news even though they were told it was not
uncommon for a transplant recipient to experience at least one episode
of rejection. The protocol for her rejection was to be administered
high doses of IV steroids for three days to combat her T cells, the
cells responsible for putting up the fight. The transplanted heart is
“foreign” to the recipient’s body and the only means to help the organ
to be accepted is through drugs that suppress immune system. The
challenge for the doctors is to reduce the recipients immune system
enough to keep the body from rejecting the heart but not so much that
the recipient is a host to other diseases or infections. Therefore,
during this period it was critical for Kelly to wear a mask and gloves
when in public to avoid possible exposure to anything that could cause
a further setback.
After 4 months of treating her rejection with various treatments from
OKT3, high steroid doses, medication changes, and a new experimental
process known as Photospheres (this is sort of a combination of
dialysis and chemotherapy), Kelly finally received a positive report
indicating her body was no longer rejecting her new heart.
Upon hearing the
good news, she immediately began to take steps towards getting to know
her body, which physically no longer seemed like her own. This meant
that she had to get acquainted with the dynamic of a very “alive”
heart in a very “frail” body. She began with baby steps - learning to
modify her exercise patterns as needed due to her heart response
delays and blood pressure changes. As frustrating as it was at times,
she kept at it, doing something active every day. She continues this
philosophy as she believes the process of gaining strength is just as
important as maintaining it. And what a luxury - to be able to do
what you want without your body saying “no”. |